Pursuing testimonial justice: Language access through patient-centered outcomes research with Spanish speakers
Martínez, Glenn A. Showstack, Rachel E. Magaña, Dalia Dejbord-Sawan, Parizad Hardin, Karol J.
Martínez, Glenn A.
Showstack, Rachel E.
Magaña, Dalia
Dejbord-Sawan, Parizad
Hardin, Karol J.
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Issue Date
2021-12-27
Type
Article
Genre
Keywords
Patient-centered outcomes research,Language access,Healthcare services,Healthcare,Social justice,Testimonial justice
Subjects (LCSH)
Citation
Glenn A Martínez, Rachel E Showstack, Dalia Magaña, Parizad Dejbord-Sawan, Karol J Hardin, Pursuing Testimonial Justice: Language Access through Patient-centered Outcomes Research with Spanish Speakers, Applied Linguistics, Volume 42, Issue 6, December 2021, Pages 1110–1124, https://doi.org/10.1093/applin/amab060
Abstract
Patient-Centered Outcomes Research (PCOR), rooted in the more established tradition of Community-Based Participatory Research (Deeb-Sossa 2019), seeks to empower patients in determining the most appropriate healthcare options by including and amplifying their voices in every aspect of the research process. In this article, we report on the outcomes of a four-year PCOR engagement effort in the US Midwest that aimed to include and amplify patient voices in language in healthcare policy. Our findings revealed feelings of patient disempowerment, discomfort with the social distance created by remote interpreting, and a mismatch of knowledge and expectations among interlocutors in medical interactions. Our discussions also underscored women’s work in addressing healthcare issues within the family and their resilience in describing systemic inequities in health communication. We argue that participation in PCOR empowers patients through the enactment of testimonial justice. We conclude by discussing implications and recommendations for language researchers who are interested in working toward social justice in language in healthcare policy in USA and building a multi-stakeholder platform for PCOR.
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Publisher
Oxford University Press
Journal
Book Title
Series
Applied Linguistics;2021
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ISSN
0142-6001
1477-450X
1477-450X