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dc.contributor.authorKagoné, Moubassira
dc.contributor.authorMpinga, Emmanuel Kabengele
dc.contributor.authorDupuis, Marc
dc.contributor.authorMoussa-Pham, Marie-Solène Adamou
dc.contributor.authorSrour, Margaret Leila
dc.contributor.authorGrema, Maïna Sani Malam
dc.contributor.authorZacharie, Ngoyi-Bukonda
dc.contributor.authorBaratti-Mayer, Denise
dc.identifier.citationKagoné M, Mpinga EK, Dupuis M, Moussa-Pham M-SA, Srour ML, Grema MSM, Zacharie N-B, Baratti-Mayer D. Noma: Experiences of Survivors, Opinion Leaders and Healthcare Professionals in Burkina Faso. Tropical Medicine and Infectious Disease. 2022; 7(7):142.
dc.descriptionOpen access article . Click on the DOI to access the publisher's version of this article. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (
dc.description.abstractThe scientific literature on noma (Cancrum Oris) has clearly increased in recent decades, but there seems to have been limited analysis of issues around the psycho-social impacts of this disease. Even when these issues have been addressed, the focus has tended to be on patient experiences, whereas the community dimension of the disease and the role of healthcare professionals and community leaders in mitigating these impacts remain largely unexplored. A study in the form of semi-directed interviews with 20 noma survivors and 10 healthcare professionals and community leaders was conducted between January and March 2021 in Burkina Faso with the aim of describing the experiences of noma survivors, generating knowledge about living with the burden of the disease and understanding the attitudes of community leaders towards the disease. The results reveal that noma is a disease that affects economically vulnerable populations and leads to extreme household poverty. As far as treatment is concerned, patients tend to turn to practitioners of both traditional and modern medicine. Within communities, noma survivors face discrimination and stigma. The study highlighted a lack of information and knowledge about noma. However, surgical operations lead to patient satisfaction and these remain one of the coping strategies used to tackle the stigma and discrimination. The recommendations set out in this article are aimed firstly at stepping up research into the psycho-social impacts of noma, and secondly at considering these impacts in regional programmes and national plans to combat the disease.en_US
dc.description.sponsorshipThis research was funded by an umbrella of agencies and organizations, mainly the Swiss network for international studies—Geneva Switzerland; Hilfsaktion Noma e.V. Regensburg, Germany; Service de la Solidarité Internationale—Geneva Switzerland; Noma-Hilfe-Schweiz, Zurich—Switzerland; Winds of Hope, Lausanne—Switzerland. The APC was funded by the same organizations. (accessed on 18 February 2022).en_US
dc.relation.ispartofseriesTropical Medicine and Infectious Disease;Volume 7, No. 7
dc.subjectHealthcare professionalsen_US
dc.subjectOpinion leadersen_US
dc.titleNoma: Experiences of survivors, opinion leaders and healthcare professionals in Burkina Fasoen_US
dc.rights.holder© 2022 by the authorsen_US

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